Community Corner
Kyleigh's Cure Road Race Raises Money for Rare Disease Research
Kristine and Sean Lydon's daughter Kyleigh has a rare disease that requires more study and funding, so they have worked tirelessly to raise money with help from those in Braintree and nearby communities.
Registration remains open for the 3rd Annual Kyleigh's Cure Road Race this Sunday, June 9 at 9:30 a.m.
Eight-year-old Kyleigh Lydon, whose parents Sean and Kristine are Braintree police officers, was diagnosed as an infant with a rare disease called Galactosemia, which does not allow the 6-year-old to break down a simple sugar called galactose.
Accumulation of galactose is poisonous to the body and causes serious complications such as liver failure, kidney failure, and brain damage. There is currently no cure or treatment for Galactosemia.
Find out what's happening in Braintreewith free, real-time updates from Patch.
When the Lydon family learned about Kyleigh's disease, they also found out that little was being done to discover a cure or treatment because of its rarity.
They have gone on to raise hundreds of thousands of dollars for galactosemia research. Proceeds from Sunday's race will go toward finding a cure.
Find out what's happening in Braintreewith free, real-time updates from Patch.
Registration starts at 8 a.m. on June 9 at The Great Pond Room. There is 10K, 5K, wheelchair and under 18 divisions, and 5K walk.
For more information and to sign-up, go to http://www.kyleighscure.com/events.html
Get more local news delivered straight to your inbox. Sign up for free Patch newsletters and alerts.
