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Babesiosis

The New Lyme Or Just A Way To Spoil A Wedding?

 

 

If you’re about to take a bite of an egg salad sandwich or a falafel wrap with cucumbers and tomatoes, or something equally delicious, stop right here. Eat no more until you read the following story or, still better for you and your lunch, forego the story and tuck in! Bon appetite! 

Still with me? It was a Sunday in October 2009 and I was living with a fellow journalist named Jack Shea. Jack was ostensibly my fiancée, but since I’m slightly allergic to terms of conventional endearment, let us call him my friend and soul mate with whom wedding plans had been successfully hatched.

Only problem was, I’d developed a rash from my neck to my ankles. This wasn’t a simple, uniform rash. No, the surface of my skin was some kind of mapping of all the rashes known to humankind: inflamed areas, red spots like measles, beige Argyll patterns, nubby lesions, keloidy streaks, in all kinds of patterns from butterflies to blood spatters.

Hugh Laurie on the TV series House would have pondered the state of my poor hide, then ordered up blood tests, X-rays and MRI’s while his devotees murmured, “It’s not lordosis?” and, “Has she traveled to a third world country?”

The third world country was my impending marriage, but I’m getting ahead of myself.

On that Sunday afternoon, the general itch and discomfort had become too much to bear. I knew something was drastically wrong, but what? I googled rashes (not a fun search considering all the photos available for one’s perusal), and came up with the presenting symptoms of Lyme disease. Of course, Lyme! Every Islander gets it, every other Islander still has it. We develop Lyme from ticks who feed on mice, or the other way around, soon the ticks are hopping onto deer, and a Frankenbug pops out and cries, “Boo!”

For over a year, I’d been tending and weeding a friend’s seven acres in Chilmark. Moreover, in the dark cottage in the “holler” of the property where Jack and I had shacked up for the fall, a bat swooped in and out of some indecipherable ceiling crack. A mouse was at-large indoors, but had turned up its cute nose at the tidbits on offer in the Have-A-Heart trap propped up on the counter.

A breeding ground for Lyme? You bet! We could have started an Ebola scare from this spot.

I needed medical care and I needed it STAT (as they say on hospital shows after ruling out lordosis).

So there I sat on crinkly paper in a room of the ER. Dr. Larsen examined the rash on my wrist, then the ones on my legs, my back, between my thumb and pointer finger, and so on. He frowned. A lot. Just like House would have done. Doctors hate to hear from patients what precisely ails them, but I trotted out my Lyme hypothesis. He frowned some more.

At last he asked, “Is there anything in your life that's causing you stress at this time?”

I reflected long and hard. “Well, I’m getting married on Saturday."

Dr. Larsen laughed. He laughed quite a lot. I gathered from his earlier, aloof personality, that he wasn’t one to laugh in a patient’s face. But still he laughed and, moreover, grabbed my hand, my shoulder, and squeezed in solidarity, and with utmost compassion, even as he went on laughing.

His face turned solemn again as he said, “We’ll run some blood tests for Lyme. Results won’t be back until Wednesday. If the test comes back positive, you’ll have to see us on Saturday.”

“Okay.”

He said, dead-pan. “You’re getting married on Saturday.”

“Oh. Right.”

"I’m going to call you Friday evening to remind you.”

He lapsed into a fresh gale of laughter.

On Wednesday morning, I discovered four messages from the hospital, each in ascending levels of alarm: I had contracted something called babesiosis. I must call the nurse, pick up two prescriptions, and start taking the meds before I died.

So what is this disgusting new tick-borne illness (and, yes, that tiny archenemy, famed for transmission of Lyme, is behind this one, too).

Back in that fall of ’09, there were scant cases of babesiosis in humans, although animals had been dropping right and left from it.

A scientist provided the following info on Wikipedia, “Babesiosis is a malaria-like parasitic disease by infection with babesia, a genus of protozoal piroplasms.”

Well. That clears up much of the confusion.

It explains why, in addition to a scrip for antibiotics, I was given this pasty white stuff, atovaquone, which is force-fed to malaria patients in the grip of fever and delirium. I say “force-fed” because my son, who’d flown in for the wedding, noticed my gag reflex at the sight of this paste that looked like tile grout, only chalkier. He squeezed a couple of inches onto a baguette of artisanal French bread, then offered it to me with a grim look on his face. And what a waste of artisanal French bread!, but I scarfed it down twice a day.

Anything else we need to know?

Babesiosis is a vector-borne illness usually transmitted by Ixodes scapularis ticks.” Those bastards! “Babesia microti uses the same tick vector as Lyme disease and ehrlichiosis, and may occur in conjuntion with these other diseases.” Oh, and get this: “Most cases of babesiosis resolve without any specific treatment.” Now you tell me! And one last fun factoid: “The disease was named after the Romanian bacteriologist, Victor Babes.”

You go, Victor! You are now among the Immortals.

The babby bug went away, whatever it was; I was too busy getting married to notice any malign symptoms. Mostly I was relieved to be rid of the rash which, incidentally, is never itemized as a presenting factor in Victor Babes’s disorder. No, the skin-turned-DMZ was something else. It derived, I now believe, from the ghost of Sigmund Freud writing all over one woman’s body, “This decision to marry is RASH!”

So the next time you’re walking in the woods, beware those Ixodes scapularis ticks. Watch out for all ticks, of course, but you know that.

When you arrive home and, perchance, you experience mild fevers and diarrhea, and if you have a wedding coming up – most exasperatingly, your own – take two aspirin and call Dr. Larsen in the morning.

About this column: Holly Nadler wrote "Vineyard Confidential: 350 Years of Scandals, Eccentrics, and Strange Occurrences" (2006 Down East Books). It was profiled in Liz Smith's nationally syndicated column. The book, still going strong in Island bookstores, is also available on amazon.com. Now Nadler builds on this work of nutty Island nougats in a weekly column for MV Patch. Related Topics: Holly Nadler and Island humor

Michael West

7:08 am on Monday, January 28, 2013

Holly, maybe the tick was trying to tell you something.

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Holly Nadler

11:10 am on Monday, January 28, 2013

Michael, yes, that's why I named it Dr. Freud!

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David Whitmon

11:10 am on Monday, January 28, 2013

Holly. I had Babesiosis. I thought my age was catching up with me as I was having one hell of a time riding up Skiff Ave with two kids on our bicycle built for three. I was feeling like Superman must feel when exposed to Kryptonite. Henry Nieder ordered up blood work checking me for 5 different know tick borne nasty's as I had also had Tularemia back 1999. In this caseup popped the big "B". One drug to kill the parasite and another to boost red blood cell production. I was feeling good....... ;-)

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Holly Nadler

11:31 am on Monday, January 28, 2013

David, you're obviously back to Superman! btw, when I returned a couple of week's after treatment to my family physician, the nurse said, "I can't believe you just had a wedding. Most people with babesiosis would be in the hospital!"

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David Whitmon

11:51 am on Monday, January 28, 2013

WOW! I wasn't in the hospital for Babesiosis but I was feeling pretty bad before the drugs kicked in. I would wash the dishes and would have to take a two hour nap afterwards. My red blood cell count was down so low my heart was pounding with little or no oxygen getting to my cells.

I was in the hospital, the ICU for a week and was an out patient for 10 days after my release. They were pumping me full of three bags of antibiotics every day. I couldn't walk for 2 weeks and was completely off the bicycle for 4 months. I was in so much pain when I started riding again, my doctor was not amused. I was sick puppy. The next year after that that fellow died from Tularemia. He was 10 years younger than me.

Richard Bruns

11:59 am on Monday, January 28, 2013

Lordosis is a spinal 'shape' defect. I have a slight case of it. It doesn't make sense, even tongue in cheek, in this context.

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Michael West

1:05 pm on Monday, January 28, 2013

Richard, you have to forgive Holly who makes up words all the time, only to discover once in a while that there is actually a word by that name. I had always misunderstood the word 'lordosis,' assuming that it was a more extreme condition than lorditis, the former (lorditis) being "inflamed about that God thing" and the latter (lordosis) being "morbidly fixated on that God thing." You can see how far wrong I was.

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Holly Nadler

3:21 pm on Monday, January 28, 2013

I was using hyperbole -- can't help myself. And Richard, I am so sorry to give offense. I should have kept the info in my first draft which I placed in in parentheses that, on the TV show, House, lordosis is always offered as a possible diagnosis and always ruled out.

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Cogito

7:27 pm on Monday, January 28, 2013

Deer ticks spreading Lyme & babesiosis are a neglected public health issue.
The tick also infests field mice. One can buy tubes of insecticide-treated cotton to place on one's property. Eg. see ticktubes.com The mice line their nests with the cotton; the ticks on the mice die. At the very least, this reduces the chance of picking up a tick in your yard.
Lyme is much easier to treat shortly after infection than several months down the road. The organism is (like syphilis) a spirochete that can get into the brain.

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Martha Magee

1:06 pm on Tuesday, January 29, 2013

And here I thought it was a condition common only if one is some kind of extreme "babe" - "babes - iosis".

Which I think Holly somehow qualifies for if she managed to get herself "to the church on time" and get married on Saturday while all this was going on!

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Holly Nadler

8:05 am on Wednesday, January 30, 2013

Martha, thank you! But if that's the definition of babe-i-ness, I got over it fast!

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Bloodyrue Andrue

8:51 am on Wednesday, January 30, 2013

When I was a kid every year it was mandatory that Anna Mae would give us a "Tick Shot."

Back in that day it was Rocky Mountain Spotted Fever shots.

They don't seem to do that anymore, or at least my kids have never had one of those.
I wonder what happened to those required shots.

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Holly Nadler

10:44 am on Wednesday, January 30, 2013

Bloodyrue Andrue, the funding was apparently withdrawn from Lyme vaccine research; a pity because so many people, not only in New England now, but all over the country, are suffering from chronic Lyme. For now, the best thing to do is to perform the classic "tick search" when children are little, checking in their hair and around their necks. A few years back, my dog and I walked the path to Cedar Tree Neck in May. We picked up so many ticks, that a couple of them dropped out of my hair and into the salad I was eating. Oh ick!

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Bloodyrue Andrue

7:14 pm on Wednesday, January 30, 2013

I have had 2 live active Lyme cycles. I now have Parkinson's. Some people have mentioned they may be related events. I am not so convinced of that but who knows.

David Whitmon

12:37 pm on Wednesday, January 30, 2013

Holly. I was involved with a Tularemia study that was funded by Homeland Security. Since at one time both the USSR and the USA were looking into Tularemia as a biological weapon they figure that they needed a vaccine. Every few weeks or so I would get a call to come on down to the clinic to *give* a vial of blood. Each time I would receive a check for $100.00.

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